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Data Donation
Information/Description
In this survey, share your opinions and concerns about data donation.
What’s your gender?
Male
Female
Which age group do you belong in?
Under 12
12-15
16-18
19-24
25-35
36-50
Above 50
Where are you from?
- Select -
Afghanistan
Albania
Algeria
American Samoa
Andorra
Angola
Anguilla
Antarctica
Antigua & Barbuda
Argentina
Armenia
Aruba
Ascension Island
Australia
Austria
Azerbaijan
Bahamas
Bahrain
Bangladesh
Barbados
Belarus
Belgium
Belize
Benin
Bermuda
Bhutan
Bolivia
Bosnia & Herzegovina
Botswana
Bouvet Island
Brazil
British Indian Ocean Territory
British Virgin Islands
Brunei
Bulgaria
Burkina Faso
Burundi
Cambodia
Cameroon
Canada
Canary Islands
Cape Verde
Caribbean Netherlands
Cayman Islands
Central African Republic
Ceuta & Melilla
Chad
Chile
China
Christmas Island
Clipperton Island
Cocos (Keeling) Islands
Colombia
Comoros
Congo - Brazzaville
Congo - Kinshasa
Cook Islands
Costa Rica
Croatia
Cuba
Curaçao
Cyprus
Czechia
Côte d’Ivoire
Denmark
Diego Garcia
Djibouti
Dominica
Dominican Republic
Ecuador
Egypt
El Salvador
Equatorial Guinea
Eritrea
Estonia
Eswatini
Ethiopia
Falkland Islands
Faroe Islands
Fiji
Finland
France
French Guiana
French Polynesia
French Southern Territories
Gabon
Gambia
Georgia
Germany
Ghana
Gibraltar
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guernsey
Guinea
Guinea-Bissau
Guyana
Haiti
Heard & McDonald Islands
Honduras
Hong Kong SAR China
Hungary
Iceland
India
Indonesia
Iran
Iraq
Ireland
Isle of Man
Israel
Italy
Jamaica
Japan
Jersey
Jordan
Kazakhstan
Kenya
Kiribati
Kosovo
Kuwait
Kyrgyzstan
Laos
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao SAR China
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Martinique
Mauritania
Mauritius
Mayotte
Mexico
Micronesia
Moldova
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar (Burma)
Namibia
Nauru
Nepal
Netherlands
Netherlands Antilles
New Caledonia
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
Northern Mariana Islands
North Korea
North Macedonia
Norway
Oman
Outlying Oceania
Pakistan
Palau
Palestinian Territories
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn Islands
Poland
Portugal
Puerto Rico
Qatar
Romania
Russia
Rwanda
Réunion
Samoa
San Marino
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Sint Maarten
Slovakia
Slovenia
Solomon Islands
Somalia
South Africa
South Georgia & South Sandwich Islands
South Korea
South Sudan
Spain
Sri Lanka
St. Barthélemy
St. Helena
St. Kitts & Nevis
St. Lucia
St. Martin
St. Pierre & Miquelon
St. Vincent & Grenadines
Sudan
Suriname
Svalbard & Jan Mayen
Sweden
Switzerland
Syria
São Tomé & Príncipe
Taiwan
Tajikistan
Tanzania
Thailand
Timor-Leste
Togo
Tokelau
Tonga
Trinidad & Tobago
Tristan da Cunha
Tunisia
Turkey
Turkmenistan
Turks & Caicos Islands
Tuvalu
U.S. Outlying Islands
U.S. Virgin Islands
Uganda
Ukraine
United Arab Emirates
United Kingdom
United States
Uruguay
Uzbekistan
Vanuatu
Vatican City
Venezuela
Vietnam
Wallis & Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Åland Islands
What is the highest education level you have attained?
Elementary School
Middle School
High School
Bachelor
Master and/or Doctorate
Do you know that you can ask for an electronic copy of your personal data (for example as Excel sheet), from the online platforms you use such as Facebook, Uber, Netflix, Twitter, Amazon, Banks, Hospitals, etc.?
Yes, and I know how
Yes, but I do not know how
No, I did not know
Do you know that it is also possible to get data from gadgets like smart watch, car sensors, some advanced air conditioner models, etc?
Yes, and I know how
Yes, I have seen it through some apps and software
Yes, but never saw it
No
Data donation is consenting to access or actively share data related to different aspects of your life to be used for research and public good. Given the choice of complete anonymity and the freedom to decide what, how, when and with whom to share, would you donate some of your personal data?
Yes
No
I’m not sure
What sort of data would you be willing to donate?
Health (such as your vitals or the adverse reactions you had to a medicine)
Finance (such as your monthly income and your typical weekly expenditure at the pandemic time)
Shopping preferences (such as the shops you visit and products you typically search for)
Social networking (such as the accounts you follow or posts you like and share on Twitter)
Environment data (such as air quality, humidity and temperature changes in your home or car)
Which of the following information would you need when deciding to donate your data or not?
The overall purpose of the studies that will use my data
How exactly my data will be used, e.g. how they are filtered, processed and interpreted.
If confidentiality is strictly protected
How my data could be helpful to others
The identity of people and organizations that will be able to see my data
What decisions and changes the study led to after they used my data
Would you expect a show of gratitude in return of your data donation?
Yes, I would expect something tangible or monetary in return, e.g. a shopping voucher
Yes, I would expect something intangible in return, e.g. a certificate of donation or a badge
Yes, I would expect information in return, e.g. to know about myself and my life better
No, I would do it anyway although it would be nice to get something in return
No, I would do it and I would not expect anything in return
If you have ever donated your data before, what was the purpose of the study? How did you come to know about it? Why did you prefer to donate your data? Please share about your experience.
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